Poet Suzanne Edison knows the ups and downs of chronic illness too well. Her daughter has juvenile myositis, a rare autoimmune disorder. Today she reads two poems about the way her child’s illness affects her parenting: “Betrayal” and “Bloodwork.”
Learning that your child has a serious, chronic illness is like falling off a cliff, without knowing how — or if — your feet will ever find the ground again, says poet Suzanne Edison.