chronic illness

Lifelong Smoker Goes Into Extra Innings In His Fight Against "Mr. C"

Sep 18, 2013
Courtesy of Susan Ewbank

How do we own up to our own mortality? RadioActive reporter Madeline Ewbank tells the story of one man's baseball game against cancer and the odds stacked against him.

Jon Nyberg is sitting out on my porch, watching the sunset and working on the latest New York Times Sunday puzzle. Fifty-two down: wake-up times, for short. He's proud of the grizzled chin and the head of wispy, gray hair he's been growing, a look his friend likes to call "the Amish experiment." But his skin hangs off his bones like his cigarette hangs off his lips.

Invisible Illnesses: Imaginary Or Not Yet Recognized?

Jul 2, 2013

More than 8 million people in the United States suffer from diseases like fibromyalgia, chronic fatigue syndrome, and lyme disease. But these diseases don’t have a diagnostic test or a cure. And some doctors have long dismissed them as imaginary. Ross Reynolds talks with Dr. Andy Kogelnick, director of the independent medical research center, the Open Medicine Institute, about her research on these invisible illnesses.

Poet Suzanne Edison
Seedison.com

Poet Suzanne Edison knows the ups and downs of chronic illness too well. Her daughter has juvenile myositis, a rare autoimmune disorder. Today she reads two poems about the way her child’s illness affects her parenting: “Betrayal” and “Bloodwork.”

Poet Suzanne Edison
Seedison Designs

Learning that your child has a serious, chronic illness is like falling off a cliff, without knowing how — or if — your feet will ever find the ground again, says poet Suzanne Edison.